(PVFS) Post Viral Fatigue Syndrome (CFS) Chronic Fatigue Syndrome (M.E.) Myalgic encephalomyelitis
After being diagnosed with PVFS I came home, did some research, and convinced myself I had M.E. / CFS (both mean the same). However, on doing a little more research I have found that PVFS can be temporary and a diagnosis of CFS or M.E. is not given until after 6 months of having PVFS.
Previous battles with PVFS
Around 2003 I was also diagnosed with Post Viral Fatigue Syndrome. Unbeknownst to me I also had an diagnosed pituitary tumour – which might have been causing strange things going on in my body. Later on it was discovered I had the rare condition known as Acromegaly. Up until recently I convinced myself that my previous PVFS was related to Acromegaly. However, now this has been disproved – unless my pituitary tumour is growing again – which is highly unlikely.
What are the symptoms of Post Viral Fatigue Syndrome?
- A feeling way beyond tired. An utterly overwhelming fatigue worse than any hangover. Made worse by noise, stressful situations and even the smallest amount of exercise.
- Swollen and painful neck
- Diarrhea and unsettled stomach
- Disturbed sleep
- Lack of concentration / brain fog
Other people get different symptoms – such as headaches, but on researching mine are fairly classic.
How I will cope with PVFS
So I’ve been signed off as unfit to work, which I guess means that PVFS will stop me from walking in Bowland. No chance! My plan (in March) is to start by say a half mile walk, then a couple of days later I’ll raise it to say 3/4 of a mile, and so on.
It’s strange because at the moment even walking up the stairs can tire me out, which seems bizarre to think that last month I was walking up Ingleborough on a 10 mile walk. My plan (although I won’t stress myself too much) is to be back walking 10 mile hills by the end of summer!