Post Viral Fatigue Syndrome (PVFS) update

(PVFS) Post Viral Fatigue Syndrome (CFS) Chronic Fatigue Syndrome (M.E.) Myalgic encephalomyelitis

After being diagnosed with PVFS I came home, did some research, and convinced myself I had M.E. / CFS (both mean the same).  However, on doing a little more research I have found that PVFS can be temporary and a diagnosis of CFS or M.E. is not given until after 6 months of having PVFS.

Previous battles with PVFS 

Around 2003 I was also diagnosed with Post Viral Fatigue Syndrome.  Unbeknownst to me I also had an diagnosed pituitary tumour – which might have been causing strange things going on in my body. Later on it was discovered I had the rare condition known as Acromegaly. Up until recently I convinced myself that my previous PVFS was related to Acromegaly.  However, now this has been disproved – unless my pituitary tumour is growing again – which is highly unlikely.

What are the symptoms of Post Viral Fatigue Syndrome?

Mine are

  1. A feeling way beyond tired. An utterly overwhelming fatigue worse than any hangover.  Made worse by noise, stressful situations and even the smallest amount of exercise.
  2. Swollen and painful neck
  3. Diarrhea and unsettled stomach
  4. Disturbed sleep
  5. Tinnitus
  6. Lack of concentration / brain fog

Other people get different symptoms – such as headaches, but on researching mine are fairly classic.

How I will cope with PVFS

So I’ve been signed off as unfit to work, which I guess means that PVFS will stop me from walking in Bowland. No chance! My plan (in March) is to start by say a half mile walk, then a couple of days later I’ll raise it to say 3/4 of a mile, and so on.

It’s strange because at the moment even walking up the stairs can tire me out, which seems bizarre to think that last month I was walking up Ingleborough on a 10 mile walk. My plan (although I won’t stress myself too much) is to be back walking 10 mile hills by the end of summer!